Leticia Velasquez - A Special Mother is Born

Leticia Velasquez - A Special Mother is Born

Leticia Velasquez - A Special Mother is Born

Tebowing in the Latin Rite

KIDS is co-sponsoring a Conference

Council on Poor Prenatal Diagnoses

& Therapeutic Intervention

Founding Partners:

Medical Students for Life, Family Research Council,

Keep Infants with Down Syndrome & Jérôme Lejeune Foundation USA

First Annual

Conference on Medical Advances in Prenatal Diagnoses

Saturday, January 21, 8:30 am – 5 pm

Family Research Council, 801 G Street, NW , Washington DC

Register at http://www.frc.org/events or watch webcast @www.frc.org

 Presenters include:

Alberto Costa, MD, Ph.D.

Byron Calhoun, MD

John Bruchalski, MD

David Prentice, Ph.D.

Gerard Nadal, Ph.D.

The Conference will bring together professionals from many different specialty areas, including genetic researchers, ob/gyn physicians, developmental pediatricians, hospital nursing staff, medical genetic counselors and medical students.  Other invited participants and guests include peer ministry providers, social service support professionals, advocates for persons with disabilities and public policy specialists. 

The goals of the Conference are:

·       affirm the life and dignity of all persons, especially those diagnosed prenatally with a disability or lethal condition

·       review how information about prenatal diagnoses of disability or lethal condition is currently delivered

·       consider how this information might be delivered more comprehensively

·       consider the impact of a new blood test for Down syndrome in obstetric care

·       explain the work of the Council and its year-long engagement on prenatal diagnosis issues

·       review best practices for postnatal care of infants with disabilities in perinatal hospice and in hospital, home and medical daycare settings

An agenda for the day will be available soon. Our host for the day, the Family Research Council (FRC), has limited space, so this first Conference is by invitation only.  However, FRC will be webcasting all general sessions that day, which can be viewed viawww.frc.org.  For more information, contact Jeanne Monahan at Family Research Council, jfm@frc.org ( 202- 225-4008) or Peg Kolm, at mkolm@adw.org (240-994-0603).  We welcome your interest and expertise in this effort, and hope you can join us on January 21.

Two reasons I support Karen Santorum for First Lady

Rick Santorum with Isabella, Leticia and Christina Velasquez 

Jennifer Hartline sat down with e Karen Santorum to discuss her family. Karen is an attorney and neo-natal nurse, the author of two books and most of all devoted mother and wife to Rick. In addition to enduring life on the campaign trail the couple has had to endure wretched attacks on their handling of their greatest sorrow, the loss of their son Gabriel from left wing pundits Alan Colmes and Eugene Robinson. But Karen returns mercy for vitriol, because she says, "you never lose with love."

Karen and Rick have a deeply rooted Catholic faith, they homeschool their seven children and attend a Novos Ordo Mass in Latin, and are seen by parishioners in their Virginia parish during the week at daily Mass. Its easy to see where Karen nourished her gentle attitude of returning good for evil. She has a truly Catholic understanding of suffering which has shaped her loving forgiveness. I can't imagine how much pain these unworthy attacks must have caused her, evoking as they must have, the memories of the terrible loss of her son Gabriel. She shares Gabriel's story in a moving book "Letters to Gabriel"

She says, about suffering,
"All you can do is trust Him and embrace the cross you're given, because there's definitely a reason," she'll say. "Crosses come in all shapes and sizes, but we're better because of them. Even in the worst of times God is working and His light will shine through."

Author of "You Never Lose with Love", Jennifer Hartline writes;

"Where our abortion-minded culture sees a "burden", Rick and Karen see Bella -- their beautiful blessing.
"I'm a blessed mother of a special-needs child. Since her birth, I've learned that God truly has a reason for everything. Like every one of us, God has a purpose for her. Bella has made all of us grow in our faith like never before, made us more virtuous and shown us God's love and mercy. Her life is a very happy and joyful life. Bella is an angel. I truly believe I am in the care of a saint."

Now how often do we get the opportunity to vote for the father of a saint for president?

On a personal note, Rick gave permission to reprint his story about Isabella Maria, their daughter who was born with trisomy 18 entitled "Two Years Worth Every Tear" in my book "A Special Mother is Born". This photo was taken at a Town Hall at the home of family values activist and former gubernatorial candidate, Karen Testerman. A month later, last Monday evening, I met Rick and Karen at a rally in Manchester NH. Rick introduced me to Karen as the author of the book. Karen said, "I love your book!". I embraced both of them and we took a photo together (I will post it when I receive it).

Read more by Jennifer Hartline at Catholic Online. 

Catholics: join me in a nine Memorare Novena for Rick Santorum today

Memorare

Remember, O most gracious Virgin Mary, that never was it known that anyone who fled to thy protection, implored thy help, or sought thine intercession was left unaided.Inspired by this confidence, I fly unto thee, O Virgin of virgins, my mother; to thee do I come, before thee I stand, sinful and sorrowful. O Mother of the Word Incarnate, despise not my petitions, but in thy mercy hear and answer me.
Amen.

Last night when I met Rick and Karen and thanked them for their witness to life, I promised I would lead my friends and followers in prayer for him in the New Hampshire primary today. 

My interview with the Long Island Catholic

I told Mary, the journalist,  the story of how
"A Special Mother is Born" came to be.
Here's an excerpt;

Velasquez said “A Special Mother is Born,” “my own story of Christina’s birth,” was first published in Faith & Family magazine in spring of 2007. “I received so many letters in response from women who had the same epiphany of being surprised by this powerful joy, this encounter with Jesus in the person of their special needs child, that I knew I was on to something,” she continued. “I began collecting stories from mothers three years ago, and was delighted to meet many courageous faith-filled women.” Reading former Senator Rick Santorum’s story in The Philadelphia Inquirer about his daughter with special needs inspired Velasquez to ask fathers to contribute to the book as well.

You can read it on their website.

Prenatal Down Syndrome Diagnosis Booklets Available Free to Medical Providers

from PR.com:
Atlanta, GA, December 23, 2011 --(PR.com)-- This week, Canister launched a revamped Lettercase program to distribute free copies of "Understanding a Down Syndrome Diagnosis" to medical providers nationwide. The booklets, authored by Stephanie Meredith, were created with input from representatives of the national medical organizations, including the American Congress of Obstetricians and Gynecologists, the American College of Medical Genetics, and the National Society of Genetic Counselors, and the national Down syndrome organizations.

The booklet contains accurate, up-to-date, and balanced prenatal information about Down syndrome for patients learning about a prenatal diagnosis from their physician. The booklet covers available health and education services, common medical conditions for babies with Down syndrome, information about pregnancy options, and helpful resources about the condition. The booklet also includes a Spanish translation and has been optimized for different reading levels.

Practicing medical providers who are involved in delivering Down syndrome diagnoses are eligible for a free copy of the booklet at http://www.lettercase.org/, and medical facilities may also purchase additional copies as needed. The philanthropic program is funded exclusively by the creators of the booklet, Canister, a small design studio in Atlanta, GA.

Justin Meredith, the owner of Canister, explained, "We created these booklets four years ago to fill a void of resources for expectant parents learning about a Down syndrome diagnosis. Since that time, we have distributed nearly 20,000 booklets and been fortunate enough to receive feedback and assistance from representatives of the national medical and Down syndrome organizations. The medical professionals have always been the keystone of our program, so we've dedicated our professional skill and funding capacity to make this resource available to them."

St Andre Bessette

Today's saint, St Andre Bessett, lived a couple of towns away from me in the mill town of Mossup CT for a while before he entered religious life. He was frail and moved from job to job as they kept firing him. They considered him a loser, but he built St Joseph's Oratory in Montreal. He didn't have anything to begin with but a dream and a devotion to St Joseph. 

 Catholic Online says;

Despite financial troubles, Brother Andre never lost faith or devotion. He had started to build a basilicaon the mountain but the Depression had interfered. At ninety-years old he told his co-workers to place a statue of St. Joseph in the unfinished, unroofed basilica. He was so ill he had to be carried up the mountain to see the statue in its new home. Brother Andre died soon after on January 6, and didn't live to see the work on the basilica completed. But in Brother Andre's mind it never would be completed because he always saw more ways to express his devotion and to heal others. As long as he lived, theman who had trouble keeping work for himself, would never have stopped working for God.

His prayers worked thousands of cures for those who came to him in Montreal, however, for us in CT, especially the French Canadian community, he's our hometown saint!

May we like St Andre never let our weakness keep us from doing whatever God is calling us to do for Him. 

Read more about St Andre at Catholic Online. 

Fourth Annual KIDS Event at March for Life

We are excited to announce plans for the fourth annual KIDS event at the 2012 March for Life in Washington, DC! Once again, we will be meeting at the headquarters of the National Right to Life Committee, just a few blocks from the start of the March. See details at the end of this note for time and location.

We are honored to have Congresswoman Cathy McMorris Rodgersas our special guest for the third year in a row. Cathy is from the state of Washington and has a 4-year-old son, Cole, with Down syndrome. She is a champion for children with special needs in the U.S. House of Representatives.
Participating in the March for Life is like nothing that can be expressed in words; it just has to be experienced! Seeing and being part of the sea of pro-lifers that swarm up Constitution Avenue is so inspiring. Last year it occurred to me that out of all the thousands and thousands of different organizations, parishes, faith communities, high schools, colleges, and pro-life groups that have a presence at the March, our KIDS group may be one of the only, if not the only, group to represent a class of people who are specifically targeted for abortion--those precious unborn babies with Down syndrome.
Now that the new prenatal maternal blood test, MaterniT21, is out on the market, making it even easier to detect Down syndrome earlier in pregnancy, it is even more important for families (and friends) of children with Down syndrome to come together and have a presence at the March for Life, to show the world what a blessing our children (young and adult) are. Please, please, come if you are able! It can be overwhelming to think about driving or taking the Metro into DC with your children, but really, I think sometimes the anticipation of doing it is more overwhelming than actually doing it. If your children are not up walking the entire March, you can do just part of it. But we would so love to see you at the KIDS event!

Here are the details:
Date: Monday, January 23rd
Time: 10:30 - Noon
Location: National Right to Life Committee, 512 10th Avenue, NW, Washington, DC

Special Guest: Congresswoman Cathy McMorris Rodgers, who will arrive at 11:00 a.m.

The National Right to Life Committee generously invites us to use space in their offices and also provides sandwiches and refreshments. So you can have a nice lunch to give you energy for the March! Thank you NRLC!

Please spread the word to anyone you know who has a family member with Down syndrome, or anyone who has a heart for individuals with Down syndrome. If there is another Down syndrome group who will be participating, we invite them to join us. We hope to see you in a few weeks! (It would be helpful to let us know if you are coming, just so we can get an estimate of how many to expect. Also, we would like to give more details (cell phone numbers, parking directions, etc.))

Eileen and Leticia

http://keepinfantswithdownsyndrome.blogspot.com/

Here's my post from last year's event.

Our Lady of Perpetual Help by Justin Stroh

Got a wonderful Catholic mom in your life?

Encourage her this Christmas by giving her this inspiring, upbeat book by Dorothy Pilarski;
Motherhood Matters. 


See my review here. 

Think twice about dropping your donation into that Salvation Army kettle!

As a social worker in the eighties, I worked extensively with the Salvation Army, so I had a positive image of their good works, and regularly donated to their kettle campaign each Christmas. This all changed this week when Anita Crane, a reporter for World Net Daily sent me the Salvation Army's policy on abortion. It has loopholes which are unacceptable, too many babies fall through.

"The Salvation Army believes in the sanctity of human life. Humankind was created in the image of God (Genesis 1:27). All people – without exception – are of value to him, holding a special place in his creation (Psalm 8:5), irrespective of age, gender, race, religion, health or social status, or their potential for achievement."
But it also states, "A serious commitment to the protection and care of the unborn calls us to a commitment to the prevention of unwanted pregnancy through means such as access to reliable birth control, safety in relationships, and societal respect of women."
Specifically, it says the Salvation Army "believes that termination [abortion] can occur only when carrying the pregnancy further seriously threatens the life of the mother; or reliable diagnostic procedures have identified a foetal abnormality considered incompatible with survival for more than a very brief post natal period."

My reaction is contained within the article, but here is the long version:
As a peer minister to women facing a pre-natal diagnosis of Down syndrome, I have heard the horror stories of what the doctors tell women in order to convince them to abort their child. They are told their child will do nothing to help himself, will only live to 10 years of age, will be miserable, will make their siblings miserable, will never be able to tie her shoes, read, graduate high school, and ruin her parents' marriage. This information is patently false.

The truth is marriages last longer when a couple has a child with Down syndrome,according to this Vanderbuilt University Study, and more are graduating high school and college every day, thanks to inclusive education. No one can say how long a child will live based on information gathered pre-natally or what their IQ will be, and Dr Brian Skotko has just published the results of a survey in the American Journal of Medical Genetics saying how happy families who have a member with Down syndrome are.

I shared this in my article for the National Catholic Register;
“We mailed surveys to families around the country, and 3,150 mothers, fathers, brothers, sisters and people with Down syndrome responded. Here is just a sample of what we found:
• 99% of people with Down syndrome said they were happy with their lives;
• 97% of people with Down syndrome liked who they are;
• 99% of parents said they love their child with Down syndrome;
• 5% of parents felt embarrassed by their child;
• 97% of brothers/sisters, ages 9-11, said they love their sibling.”
Now, some would interpret Down syndrome in the definition given by the Salvation Army policy statement as "a foetal abnormality considered incompatible with survival for more than a very brief post natal period."


Some babies with Down syndrome do not live long. Some live for decades, outliving their parents.


Take another 'abnormality' trisomy 18. Most babies with t18 don't live to birth, that is true, but there are exceptions. Tell that to Rick Santorum whose three year old Bella Maria is still with us, and Mary Kellett of Pre-natal Partners for Life whose son Peter was a blessing to his family and the world till his recent death at 6 and 1/2 years.
So, if Salvation Army says abortion is OK for babies with abnormalities, most women facing such a diagnosis will be told by their health care professional that that includes them.

It is beneath the dignity of a Christian organization to allow innocent unborn children to be killed. It is beneath the God-given dignity of the babies to be told their lives can be cut short because their mother was raped (the other exception) or they are not perfect enough. If God only gives them life while in their mother's womb, who are we to cut it even shorter?


It is the position of KIDS Keep Infants with Down Syndrome that possessing an abnormal prenatal diagnosis does NOT lower the God-given dignity of a baby. We believe that all human life is sacred from conception till natural death, and if, in the tragic circumstance that a baby is destined to live only the briefest of times, only within a mother's womb or a few brief moments or days afterward, that we must give that child the full span of life and not end her life by abortion.

There is always the possibility of an incorrect diagnosis, so we must always decide on the side of life, and trust God with the life of our beloved child.
The Salvation Army should re-consider their position on this critical issue, as it is not consistent with a pro-life stance.
Let them live, Salvation Army. Let the babies live.

Support their moms if they feel that they can't do it alone, and give them hope for their child's future, if not here on earth, forever in eternity.
That is what we celebrate with the birth of the Christ Child, the birth of the giver of Eternal Life.

Send Salvation Army a message that you will not be donating until they revoke the loopholes in their abortion policy using this contact information:
Commissioner M. Christine MacMillan
The Salvation Army
International Social Justice Commission221 East 52nd Street
New York, NY 10022, USA
Phone: (212) 758-0763Email: IHQ-ISJC@salvationarmy.org

Read the entire article here.

Watch my talk tomorrow live at Family Resource Council

Follow this link to the live webcast at 12 noon EST. Please pray for me as I discuss Down syndrome; Disaster or Divine Smile?

Museum of Motherhood Talk on "Genetic Diversity"

The talk where I introduced my concept of "genetic diversity" to a conference on multicultural motherhood, given Monday at the Museum of Motherhood in Manhattan was well received. Attendees were very enthusiastic about the idea of a new paradigm of perfection, one not based on flawlessness, but on wholeness, of fulfilling one's purpose in life, as introduced by Amy Julia Becker at her keynote address for the Down Syndrome Conference at Princeton University.
You can see my chatty talk here. 

Upcoming talk at the Family Research Council

If you are in the Washington DC area, and would like to increase your awareness of the gifts offered by those with Down syndrome, please consider registering for a talk that I will be giving with Mark Bradford, Executive Vice President of the National Catholic Bioethics Center.
 We will address the new pre-natal test, MaterniT21 which is now available to expectant mothers and how it has the potential to eliminate people with Down syndrome from our society. Mr Bradford works with the Jerome Lejeune Foundation which supports promising research projects around the world seeking to improve the learning and memory of those with Down syndrome. 
We will share our personal testimonies as parents of children with Down syndrome, and why there's never been a better time in history to have a child with Down syndrome. 


Click here to register for the free event, held at the Family Research Council. 

I will be speaking at the Museum of Motherhood in NYC tomorrow

Multicultural Motherhood
Day Conference
Dec. 5th 9-4:30
Museum Of Motherhood
401 East 84th St. NYC 10028
212.452.9816
Admission $55 pre-event l $74 day of conference
BUY CONFERENCE ADMISSION NOW

9:00-9:10 Museum Tour
9:10-9:30 Joy Rose: MotherhoodFoundation@gmail.com - Multicultural Motherhood through a magnifying glass – Incorporating tolerance and traditions through family & community experiences. Joy is the Founder and Executive Director of Museum Of Motherhood. Opening remarks, museum tour and presentation on the mission and context of the Museum Of Motherhood located in New York City, USA. As a Christian, married to a Jew and practicing Buddhism in the home, Joy's direct experience blending family traditions recognizes the unifying force is our connection to our humanity. Understanding, accepting and celebrating our differences will lead us into the future. The Museum Of Motherhood is a sacred space for birthers and caregivers, managing information in a local, community and global context. She is President and Founder of Mamapalooza Inc., a company by women, promoting mothers for social, cultural and economic benefit. Inspired by her experiences as a wife and mother in the arts, Joy is dedicated to championing opportunities for Mom-Artists, Educators and Entrepreneurs.
9:30-9:50 taraneh.shirazian@mssm.edu - Global Motherhood Presents, Saving Mothers. Saving Mothers is a 501(c)3 organization dedicated to women's health, education and empowerment. Through public health initiatives, we aim to give women and their health care providers the tools they need to reduce maternal mortality and morbidity, 

10 Minute Open Discussion

10-10:20 Rachel Ishofsky: rachel@jhafrica.org - Jewish Heart for Africa. Rachel Ishofsky is the Associate Executive Director of Jewish Heart for Africa, a non-profit organization that brings sustainable Israeli technologies to rural African villages. While studying art and literature at New York University, Rachel took some time to study and teach in West Africa, where she founded a small non-profit for street children. After graduating summa cum laude with a B.A. in individualized study, she decided not to get her PhD as planned, and traveled the world instead, before returning to her native New York and joining the Jewish Heart for Africa team. Rachel has worked with various non-profits promoting the arts, education, and human rights. She speaks Hebrew and Spanish, has taught English on three continents and has traveled to over 30 countries. Rachel will be speaking about the challenges facing rural African mothers, from the unavailability of healthcare and maternity services at night without electricity, to the problem of not having vaccines to give to their children, to walking for hours to provide water for their families. She will also be speaking about the solutions to these challenges to be found in sustainable technologies.
10 Minute Open Discussion & Bathroom Break
10:30-10:50 Clare Misquitta: editor@brightsideglobaltrade.com: Healthcare For Multicultural Moms. Where are the resources for Multicultural Moms? Many multicultural moms don't get the care they need because of health disparities relating to ethnicity and race that are often ignored. Clare will share with you the facts and show you where you can find healthcare resources in America and Globally . Learn about healthcare disparities and join the movement to spread the word and help other multicultural moms. This session is devoted to my mom who passed away in 2000 in search of cancer cure. Clare has worked with the Museum of Motherhood since 2009 and is proud to speak at the Multicultural Mom event. She is a healthcare writer and her primary goal is to inspire the business community to build a sustainable world. She has traveled, worked and spoken across the Globe and has helped many leading pharmaceutical companies to build free educative healthcare programs for patients and the healthcare community. Her multicultural expertise extends to the African American, Asian (Indian, Pakistani, Chinese, Filipino, Vietnamese, Malay, Laotian and Hmog), European and Canadian community.
10 Minute Open Discussion
11-11:20 Tanya Fields - Tanyadenisefields@gmail.com - the BLK ProjeK; Inspired by her experiences as a single working mother in a marginalized community Executive Director Tanya Fields created and founded the BLK ProjeK in 2009.Tanya used her experiences as an underserved, low income woman and mother to inform and enrich the work of several high profile local environmental organizations such Mothers on the Move, Sustainable South Bronx and Majora Carter Group. Tanya utilized her network, resources and knowledge to create the BLK Projek. The BLK ProjeK seeks to create economic development opportunities that address food justice, environmental justice and public and mental health issues. By empowering underserved women of color through political education, beautification of community spaces, urban farming and holistic health programming, by creating equal access to these enriching experiences for under-served women of color, we strengthen and empower our entire society.
10 Minute Open Discussion
11:30-11:50 Leticia Velasquez; marysjoys@yahoo.com - Adopting a New Paradigm of Cultural Diversity; How genetic diversity compliments cultural diversity. Leticia is the author of A Special Mother is Born an inspirational collection of stories from 34 parents of special needs children, and is a contributor to Encyclopedia of Catholic Social Thought, and the award-winning Stories for the Homeschool Heart. She writes three blogs: Catholic Media Review, Cause of Our Joy and the award-winning Causa Nostrae Laetitiae. She posts on Down syndrome for Ehealth and Wellsphere. She is a correspondent for the National Catholic Register, a contributor to MercatorNet, Mamazina, Catholic Online, and a columnist for Catholic Mom. In 2008 Leticia co-founded KIDS (Keep Infants with Down Syndrome) to raise awareness of the unique gifts of people with Down syndrome to society. She has appeared on EWTN, and Canadian Television program "The Arena", and on various radio shows including NPR, The Drew Mariani Show, The Day Gardner Show, and Health Matters. She, her husband, and their four daughters live in rural Connecticut. Book signing to follow.
12- 12:50 LUNCH BREAK – Sponsored by The Food Emporium, Upper East Side

1:00-1:40 Dr. Phyllis Chesler, Mothers On Trial; PChesler@phyllis-chesler.com - Phyllis Chesler is an Emerita Professor of Psychology and Women’s Studies at City University of New York. She is an author, psychotherapist and an expert courtroom witness, with classics like Women and Madness, Women's Inhumanity to Woman, the 25th anniversary edition of Mothers On Trial, and so many more. She has lectured and organized political, legal, religious and human rights campaigns in the United States and in Canada, Europe, the Middle East and the Far East. A popular guest on campuses and in national and international print, television, radio and online media, she has been an expert commentator on the major events of our time. She has lived in Kabul, Afghanistan, and in Jerusalem and Tel Aviv. She currently resides in Manhattan. Dr. Chesler is co-founder of the still ongoing Association for Women in Psychology (1969) and the National Women’s Health Network (1974), and is a charter member of the Women’s Forum (1973-74). She is a charter member of the Veteran Feminists of America, a founder and Board member of the International Committee for the Women of the Wall (1989), as well as an affiliated Professor with Haifa and Bar Ilan Universities.

3:30-4:00 Elizabeth Mangum-Sarach, Director of Birthfocus: Birthfocus@gmail.com, presenting on Nomadic Motherhood (Short Film). Elizabeth Mangum-Sarach is the Director of BirthFocus, LLC, a Licensed Clinical Social Worker, a Lamaze Certified Childbirth Educator, a Birth Doula Trainer through Dona International, a Labor Support Doula, and, in September 2011, she will be certified as New York City's first Fear to Freedom Facilitator! She has worked as a DONA certified labor support doula since 2004. She is the former Director of Maternal Health and Parenting Services at Inwood House, a non-profit that offers services to pregnant and parenting teens, and is responsible for developing their doula and childbirth education programs. She is an approved DONA International Birth Doula Trainer and offers trainings in NYC and internationally.

White Ribbon Alliance - (Short Film)

Conference Co-Coordinator Janae Seignious- Shields: JShields@goodwillny.org - Janae has a Bachelor of Arts with a Major in U.S. history from the State University of New York at Oswego and a Master’s of Social Work from Monmouth University with a concentration in International and Community Development. She is a Class III Green for All Fellow. In 2011, Janae completed the NYC Department of Youth and Community Development Family Development Credential for leaders. Since 2006 she has been working at Goodwill Industries in the Workforce Development Division. Janae co-wrote the proposal that secured funding to start a program to help single mothers become self reliant and empowered. Currently, she facilitates a monthly support group for single mothers. She continues to secure funding and donations to support programming for single mothers at Goodwill. She serves on committees that evaluate Welfare to Work Programs. She is a certified Occupational Safety and Health 10 and 30 hour General Industry Trainer. She also teaches the Roots of Success Environmental Literacy Curriculum to people on and applying for public assistance to introduce them to green career opportunities and environmental justice issues facing people in their communities. She develops training programs and strategic plans to continuously improve quality and efficiency of Goodwill’s Workforce Development programs. She also sits on the Advisory Board for Samuel Gomper’s Career and Technical Education High School in the Bronx, NY. Janae has a commitment to developing programs and services to help strengthen families and address issues of urban poverty, workforce development and environmental justice.
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Honoring the Legacy of Mothers In Perpetuity

We are the first and only facility of its kind. The Museum Of Motherhood serves as a valuable resource for everyone including those who wish to honor mother-work and those who wish to study the cultural family, from lay-people, to school children to serious scholars. As an organization devoted to educating the world about the contributions of mothers both historically and in contemporary culture, we intend to fill a longstanding void by focusing on the many roles of mothers throughout history with our physical and virtual library, exhibit facility, traveling productions, and resource center. We honor the many unsung heroes as well as the famous and great and share the remarkable stories of how birthers & caregivers cope, inspire and prevail. There are all types of mothers here: stepmothers, adoptive mothers, activist mothers, mother artists, single mothers, divorced mothers and mothers who successfully navigated married life. The Museum of Motherhood is the house that is home to their legacy.

World AIDS Day and Down syndrome; where is the cure?

One of my pet peeves was brought to mind by World AIDS Day. Not that I oppose finding a cure for HIV. 
I was a social worker when AIDS emerged in the eighties. I helped a young man with HIV who was kicked out of the loft in Greenwich Village which he had shared with his lover, and was now living miles from a payphone in the country where he slowly died of AIDS.No one was with him.  He covered his mouth in my office, and treated himself as a pariah, asking me to touch the doorknobs for him, since no one knew how AIDS was transmitted. My heart broke with compassion for him, abandoned to die alone. There was very little I could do besides make him comfortable and keep him company in 1985. 
In a little over three decades, we discovered AIDS existed, raised money for research, and found treatments. Now its effectively cured, if only we would admit that it is spread by immoral sexual activity, we could have it under control. I am happy for those who are benefiting. Too bad that young man is not among them. 


 In 1958 Dr Jerome Lejeune discovered trisomy 21, the cause of Down syndrome.  We should have rejoiced that a cure was now possible, and as with AIDS, banded together to raise funds. However, rather than joining him in his efforts to find a cure, which Dr Lejeune described as "taking less effort than sending a man to the moon" (which, by the way was done since T21 was discovered) the March of Dimes spent its millions developing a search-and-destroy methods of prenatal diagnosis, using Dr Lejeune's discovery to find unborn babies with Down syndrome. This led to an abortion rate of 92% for such babies. Some cure. Dr Lejeune watched this happen and dedicated his life to finding a cure, he said, 'I see only one way left to save them, and that is to cure them. The task is immense--but so is Hope."


Did we kill AIDS patients as a means to a cure?  
Or cancer patients?


 Dr Lejeune said, "Medicine becomes mad science when it attacks the patient instead of fighting the disease. We must always be on the patient's side, always."


Why was pre-natal diagnosis and abortion for nearly 50 years considered the end of the Down syndrome story? Sure, its a complicated disease, but so is HIV. I have to think that AIDS patients being movie stars like Rock Hudson had a lot to do with the dedication and  speed with which we found a cure. There are 2.7 million afflicted with HIV in the USA and nearly half a million who have trisomy 21, or 20% of that number. That is still a significant population, yet there were no huge TV specials, no ribbon on the White House, or until recently, no big Hollywood celebrities sponsoring efforts to raise money for Down syndrome research. Instead, researchers like Dr Alberto Costa have to give of their own money to search for a cure for his daughter's Down syndrome.
Like Dr Costa, I have a daughter with Down syndrome. She is no Hollywood celebrity, but don't try to tell her that. Her smile and her can-do attitude brighten her elementary school.  I volunteer full time to raise awareness of the inequity with which people with trisomy 21 are treated. No, not in education, thanks to the Americans with Disabilities Act, she can go to typical school right through college. But in research. 
And in the way it is considered standard medical practice that a woman expecting a child with Down syndrome gets no more than a phone number for an abortion clinic instead of information about how good life is for those with Down syndrome. Thanks to Dr Brian Skotko, whose new survey in the American Journal of Medical Genetics, brings out the fact that 99% of families are happy with their child with Down syndrome, and that the people with T21 are just as pleased with their liives. This is not what expectant women have been hearing. My friends have been told they were selfish for wanting to give birth to their child with Down syndrome, bringing misery upon themselves and their families. Its simply not true. And I am working through KIDS (Keep Infants with Down Syndrome) to change how the diagnosis is treated, especially since with the new diagnostic test, MaterniT21, the diagnosis will be offered more widely and earlier. Doctors will have results at 12 weeks instead of 22, giving women plenty of time to educate themselves about what life is really going to be like for their child with Down syndrome before making a decision to abort. 


I want people like Christina to find the compassion, resources,  and acceptance which is now offered to AIDS patients. Why shouldn't she be treated with equal dignity?
Things are changing. Three years ago, the National Institute of Health formulated a research plan to find a cure for the cognitive delays of Down syndrome, and is now forming a consortium of parents and researchers. The legacy of Dr Lejeune lives on in newly formed Lejeune USA which had a major meeting at the Neuroscience Convention last month in DC (more about that meeting in future posts). UC San Diego Down syndrome researcher Dr William Mobley said, "if you told me a decade ago, I would be discussing clinical trials for a drug to treat Down syndrome cognitive delays, with four laboratories, I would not have believed it". 
  I was heartened by the star-studded fundraiser "Be Beautiful, Be Yourself" offered by the Linda Crnic Institute for Down Syndrome in Washington last month at $500 a plate. Gladys Knight was there and so was my Congressman. We don't want people with Down syndrome to go away, but there is bright promise that within a decade, the significant delays in memory and learning which my daughter endures, may be, like AIDS, on the way to the dustbin of history.

Flashes of Color; a great film about disabilities

Rick Santorum Bares His Soul About Bella.wmv

La FNDLE au quotidien: French community of young men with Down syndrome

Shifting Perspectives at the Dublin Arts Council

Understanding the Special Olympics

Great review up by Dr Gerard Nadal

My friend Dr Gerry Nadal has a great review of "A Special Mother is Born" at National Right to Life News.

 Here we are sharing lunch in New York after my interview Friday with Michael Coren on "The Arena" which was filmed in the Time Warner Center in Columbus Circle.

Not only is Gerry a great scientist, he is a powerful writer, spellbinding speaker, and a humble, faithful Catholic dad and husband.
I am fortunate to call him my friend.
His review is up at Life Site News, and Life News as well as his popular blog Coming Home.

Preparing to tape "The Arena" in CNN studios. 

My first customer review is up at Amazon

                                                                   You can read it here. 

My book is available at the WestBow Press bookstore

                                       You can go here to order it directly from WestBow Press.

$16,000 Tax Funded 30 Wk Down Syndrome Abortion

Catholics celebrate All Hallow's Eve

As a Catholic I find Halloween, at least the way I celebrate it, with a Vigil Mass for the Feast of All Saints, and with my children dressed in costumes depicting saints, to be a very Christian celebration of the Resurrection of the Dead and the Body of Christ, the Church.
Also in the Catholic version of the Scriptures we have the book of Maccabees which affirms the Catholic practice of praying for the souls of the dead who are suffering in Purgatory. All Saints Day and the followig Feast of All Souls Day are focused on remembering that our goal is Heaven, and we have to pray for those who have gone before us to reach their Heavenly Home. We celebrate that fact by dressing as our heroes the saints who have gone to their reward in a blaze of glory. Saints are Catholic superheroes.
In these photos, Christina is dressed as St Margaret of Scotland, a queen who brought a Christian civilizing influence to her Scottish husband, King Malcolm's court, and who was known for her charity.



"II Maccabees 12:43-46:
"And making a gathering, he [Judas] sent twelve thousand drachms of silver to Jerusalem for sacrifice to be offered for the sins of the dead, thinking well and religiously concerning the resurrection, (For if he had not hoped that they that were slain should rise again, it would have seemed superfluous and vain to pray for the dead,) And because he considered that they who had fallen asleep with godliness, had great grace laid up for them. It is therefore a holy and wholesome thought to pray for the dead, that they may be loosed from sins."
Here's a montage of our celebration of All Hallow's Eve.

Down Syndrome Kid Inspires With "I Survived Abortion" Sign | LifeNews.com

Down Syndrome Kid Inspires With "I Survived Abortion" Sign | LifeNews.com

This photo has been going viral around Facebook, spreading the message that less than 10% of babies diagnosed with Down syndrome make it to birth.

Keep it going, till these wonderful gifts of God are allowed to be born and grace the world with their gifts.
Read Kurt Kondrich's latest piece about the inalienable right to life of those with Down syndrome in Renew America. 
AND pass it on!

Congressional Down Syndrome Caucus Webinar on this link

Here are the recordings of the Down syndrome conference yesterday on Capitol Hill hosted by the Congressional Down Syndrome Caucus.

http://www.ustream.tv/recorded/18108788
and
http://www.ustream.tv/recorded/18109283

Thoughts on bearing fruit, and loss of loved ones

From the blog of my friend Dr Gerard Nadal,  Coming Home 
Note: It’s been two weeks like no other. Yesterday we had the funeral mass and burial of Jon in Warwick, NY. We also had the memorial for Kortney and Sophy in Virginia.

Today, on the Lord’s Day, we rest.

Tomorrow, all will return to our lives and a new normal, a phase of healing and living the rest of our lives marked indelibly by the searing events of the past two weeks. As we keep the Blythe, Gordon, and Scharfenberger families in our prayers.

Here’s Deacon Kandra:

By a happy coincidence, this gospel touches on a theme that was so vital to Pope John Paul. In the parable, a tree is given one more chance to bring forth good fruit. The gardener gives it that chance; he offers it the gift of mercy. John Paul, you’ll remember, was beatified on the Feast of Divine Mercy. In fact, the opening prayer for this mass begins, “Oh God, who are rich in mercy…”

My take on loss and bearing good fruit

Today we bid farewell to Sr John Baptist SCRC, a beautiful nun who was only 50 years old of cancer, and dozens of people have come to her beside to pray one last time with Sister whose tender blue eyes and ever-present smile reflected Heaven.

My 14 year old daughter Bella was musing on what a shame is was that good people like Jon, Kortney and Sr John Baptist go home so young. We were peeling apples for a pie at the kitchen table. Suddenly she picked up an apple and said with a smile, “God always picks the ripe apples!”

Jon, Kortney and Sr John Baptist have accomplished their purpose in this life. No, we’re not satisfied, we wanted Jon to save more babies, either marry or go into the priesthood, and we know Benjamin Gordon wanted to raise his unborn daughter Sofy with his new wife Kortney. 

We wanted Sr John Baptist to beam her radiant smile at us, take our hands, as she always did, and reassure us that “this too will pass” as we mourn her death.

But these three have accomplished their life’s mission, sanctity. This is our mission as well, we are all called to be saints, these three were ‘ripe’ in that they were already full of God’s grace and love, and ready to go home. That is why the pain felt at their loss is so keen. The loss of their sweetness seems unbearable and unjust. 

We mustn’t begrudge God His excellent taste in wanting to pick the ripe apples. After all, they drew their sweetness from Him. 

Celebrate the Feast of Blessed John Paul II with a new DVD series

Review of John Paul II; The Man, The Pope, and His Message

By Alberto Michelini

Leticia Velasquez

Catholic Media Review.

Volume 8 I Am Your Voice: The Pope on Human Rights

Catholics have long enjoyed the work of papal videographer, Alberto Michelini. Now under a special arrangement with the Vatican, what was formerly available on video has been converted to a four DVD set containing five hours of dramatic documentary footage, organized by topic into ten 30 minute films. Each film focuses on a different aspect of the pontificate of Blessed John Paul; including youth, children, the poor, the family, Marian devotion, historic events, a day in the papal apartments, and the working world. The series is available in English, French, and Spanish.  The companion website wwwjohpaulseries.com for this DVD set has free downloads of companion discussion guides for leaders and participants for each volume with tools for group discussion. This makes this series an ideal tool for teachers to use in Catholic school, CCD, and parish adult ed programs. Study groups could use these films in private homes. Homeschooling mothers from the JPII Generation will find this ideal for teaching their children about the legacy of Blessed John Paul.

Volume 8 “I Am Your Voice” is the powerful film on human rights; Pope John Paul is seen interacting with and addressing poor, sick and persecuted people from every corner of the globe.  A heartbreaking cry of misery is documented in this film; from the slums of Latin America and Calcutta, the prairies of Canada, the plazas of South Korea, the Australian Outback, the savannahs of Africa, and the shipyards of Gdansk. The desperation of the members of the human family who are callously denied basic human dignity are heard by the man who himself suffered under two oppressive regimes.  South Americans who are living forsaken in squalid slums while neighbors enjoy luxury, occupying land was stolen from them. African lepers whom the government has forgotten, living in filth, workers who are deprived of just wages and political freedom, aboriginal tribes whose numbers are decimated yet remain proud of their culture. The Pope listens to their pleas with love and tells them “The Church hears your voice”

He responds to such pain with tears of compassion, embracing the disconsolate and dying, and railing with righteous indignation at the perpetrators of injustice at the rich who ignore the hunger of the poor, and the violence between protesters and police in Chile while he shouts to the multitude, “Love is stronger, Love is stronger!” John Paul speaks unflinchingly in defense of human rights at the United Nations in 1979, attempting to awaken the powerful of the world from the somnolence of egotism. He prays with profound sorrow at the grave of murdered Polish priest and Solidarity activist Fr Jerzy Popieluszko. Not taking sides for political purposes, as he is often accused of doing, the Pope is consistently on the side of the downtrodden, pointing out that the Church cannot be silent when human dignity is at stake.

During this moving footage, the narrator adds context to the scenes, and quotes from John Paul’s numerous encyclicals dealing with social justice; allowing viewers to grow in understanding of the Church’s position on human rights issues, as a preferential option for the poor,  while avoiding the errors of Liberation Theology. He says that Christ came that we might have life abundantly, yet does not favor one political solution over another, rather, he attempts to stir the consciences of those in charge of the world’s economic systems, both left and right. For this he receives criticism for “dabbling in politics”.

Today there are protests of increasing intensity around the world, expressing frustration with injustices both political and economic. The Holy Father addressed this in his speech at the United Nations in 1979 when he said, “wars develop when inalienable rights are violated.” His warning was fulfilling the prophetic duty of the Church, to be the voice of the oppressed. He exclaims “the Church cannot be silent when human dignity is at stake”. One of the most emotionally charged moments of this documentary is when John Paul II upbraids his fellow Poles in 1991 in Kielce when he reminds them, shortly after the Solidarity Movement brought freedom to those behind the Iron Curtain and there  was a movement to tell the Church to get out of politics with regard to abortion. He reminded his countrymen that a child is a gift from God.

No human being is forgotten in John Paul’s passionate defense of the dignity of mankind from birth to natural death. These films are compellingly narrated using the best of John Paul II’s encyclicals to educate the public about why Pope John Paul is called the Great and why millions attended his funeral shouting “Santo Subito!”

Don’t miss this outstanding series which offers an unparalleled opportunity to relive this extraordinary pontificate, and grow in your appreciation of the historical legacy of soon to be St John Paul.

In the spirit of the Gospel as well as out selfless Pope, It is “better to give than to receive”, CCC of AMERICA is hosting a contest: JPII They Love You. People who go to the Pope Series website to complete a brief web form in order to enter someone of their choosing to win a DVD set (valued at $49.99). They will have only 50 words or less to say why they are entering that particular friend, relative, neighbor, CCD teacher, Priest, etc to win a copy of the series.

More information may be found at this website; wwwjohpaulseries.com

A little Down syndrome beauty

I just discovered a stunning blogspot from a German photographer, Connie Wenk,  who like me, finds the beauty of those with T21 absolutely irresistible!
 Its called That Little Extra, and they have a calendar!

I will be calling in on the Health Matters radio show with Dr Delgado

"Health Matters" with Dr. George Delgado M.D., F.A.A.F.P. of Culture of Life Family Services (COLF's) (every 3rd Thursday)

Join Dr Delgado every third Thursday as he discusses health issues from a Catholic pro-life perspective. During the program, please call in with your health questions:             760 931 1604      and Dr Delgado will address them. Every Third Thursday, the doctor is in. 

Dr. George Delgado is the medical director of Culture of Life Family Health Care. He practices family medicine, providing medical care that is faithful to the teachings of the Catholic Church for newborns, children and adults. Dr. Delgado is an NFP Medical Consultant trained in NaProTechnology. Additionally, he and the other members of the staff are available to counsel women who are in crisis pregnancies. Dr. Delgado received his medical degree from the University of California, Davis and completed his residency at Santa Monica Hospital/UCLA. He is board certified in family medicine and in hospice and palliative medicine. Dr. Delgado is a Voluntary Associate Clinical Professor at UCSD School of Medicine.

Please call in tonight between 6 and 7PM Pacific Time with your questions and comments. Dr Delgado is discussing pre-natal testing and raising a child with special needs. The number is 760-931-1604