Showing posts with label Christina. Show all posts
Showing posts with label Christina. Show all posts

Friday, April 20, 2012

A Christina Day at Old Sturbridge Village

Christina has been off from school all week. No one else has off from school, Gabbi is preparing for chemistry, psychology,  and physiology finals, and Bella is reading The Divine Comedy as expeditiously as possible since all three books arrived from inter-library loan on the same day and must be returned soon. I have enjoyed reading it with her, but I wanted to give Christina some one on one time.

The spring weather is sunny and delightful, so I took Christina to Old Sturbridge Village to see the spring lambs. My camera batteries were dead, so we have no lamb photos.
I decided to give Christina the gift of time. We would go through OSV on her timetable (within reason, or we might still be there!) We spent as long as she wanted on what she wanted to see. No pushing her through pretty houses for my viewing pleasure or forcing her to sit through talks she doesn't understand.
She led me to sit in the schoolhouse, where she enjoys the desks and the company of the children, the coopers shop, where she impressed the cooper (barrel maker) with her skills at the wood shaping bench (this is her fifth time to OSV this year) and the barnyard where we watched the animals. We gazed at the lovely little white lambs tagging along behind their massive wooly mothers, responding to their calls with tiny bleats, and nursing with gusto as they rammed their little heads into mom's belly for more milk! What a delight it was to see her enjoy herself on the playground, when she has been denied it at school because of the risk of falling with her delicate vertebrae.
Walking leisurely through the village, stopping for a picnic or two, taking time to splash in the stone sink in one house, and trace a twig in the water of a horse trough, gave me a sense that I was on vacation. It was the most enjoyable day I've spent at OSV, with no agenda besides following Christina's lead. I wondered why I haven't done it this way before, and resolve to make tomorrow another Christina day at home. Maybe we'll walk along the river, or sit and watch birds in our little shrine in the woods.
Whenever I am interviewed about raising a child with Down syndrome, I always praise Christina's ability to stop and smell the flowers, but too often I forget to allow her to slow me down to life in the moment, absorbing the sights, sounds and aromas of life.


Thank you Lord, for this gift of a child who has the gift of living in the moment. Help me to learn from her to relish the details of this wonderful life we share.
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Tuesday, April 17, 2012

A spring swim with daddy and Christina




















The water was too frigid for Mom to join in, but Christina enjoyed it with gusto and Daddy was a good sport, helping her swim safely.

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Tuesday, April 3, 2012

The Ipad and Christina

Christina loves the computer, with the Starfall site she learned her letters, and she goes on PBS Kids often. We have applied for a grant for an Ipad 3 . She used it in speech therapy at UCONN Hearing and Speech Center, and has one at school she can't take home. Rather than watch movies when she comes home on inclement days, I'd like to see if we can engage her in some of these Ipad apps on this website. 

So far, she loves the Tom the Kitten app, where a cute grey tabby cat repeats what she says. I will post our favorite apps here when we get the Ipad.
Check out this post on Down Syndrome New Mama about apps for kids with Down syndrome.
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Wednesday, March 21, 2012

Day 21 of 21 Words for 21 Days: World Down Syndrome Day

Dr Brian Skotko, Christina and Leticia

“We call on all people of good will to ensure that health protection is grounded in a renewed spirituality: every patient is my brother.”

Servant of God, 
Dr Jerome Lejeune

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Tuesday, March 20, 2012

Day 20 of 21 Words for 21 Days


The genetic makeup of a human being is complete from the moment of fertilization: not a single scientist doubts it. What some of them want to debate is the amount of respect due to an individual based on her stage of development. If a human being is a half-inch long, does she deserve respect? If she is 20 inches long, does she deserve 40 times more? People who use years and pounds to quantify the respect due to another human being are not well intentioned.”

Servant of God, Dr Jerome Lejeune

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Monday, March 19, 2012

Christina's tenth birthday celebrations


Chrissy and Grandpa. 

Bella and Gabbi having fun.

Ten years never flew faster than this decade of my youngest daughter's life. Ten years when she taught her family to love with a more intense love, celebrate with a greater joy, and laugh heartier laughs. To notice the daffodils budding, the sunshine in the trees,  and watch the bluebirds flying overhead. She turned up the volume on our thanksgiving prayers, gave us the gift of patience, and made us into activists.
Christina has given me the courage to finally begin that writing career, and this week, my book "A Special Mother is Born"  will be on sale in the United Nations Bookstore!
Thank you to my funny, musical, loving daughter with the extra chromosome, thank you from the bottom of my heart. You are the song in my heart!
Birthday party at home

Birthday party at Grandpa's house

You can't miss a farmer at heart!

Christina likes to play school in the schoolhouse. 

A lovely 1830's family!

Christina loves the cooper's workbench!

Always the daddy's girl!

We learned it takes 40 gals of sap to make one gallon of syrup!

Aunt Mila and Daddy love Christina.

Riding a HUGE sheep!

Break from walking is time for a hug!

Daddy and Uncle Manuel love Christina. 

Lovely sunshine!

They saw fish swimming against the current. 

The family had a wonderful time!

Christina loves sheep!

Her sisters made amazing cupcakes from "Despicable Me"

The dynamic duo, Chrissy and Mary!







To celebrate Christina's ten years, we all spent a sunny, warm spring day in Old Sturbridge Village. Its a peaceful place, where she knows the way around and happily visits her favorite sites, the schoolhouse, the cooper's workshop,  the barnyard, and, of course, the candy shop!

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Day 19 of 21 Words for 21 Days


“Ending an inconvenient life is a terrible thing. And age is no protection against this threat: the elderly are as much at risk as our youngest children.”

Servant of God, Dr Jerome Lejeune


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Sunday, March 18, 2012

Day 18 of 21 Words for 21 Days


“To avoid overheating the debate, I will go much further back—to the Spartans, the only ones to eliminate newborns that they believed would be unable to bear arms or beget future soldiers. Sparta was the only Greek city to practice this kind of eugenics, this systemic elimination. And nothing remains of it; it has not left us a single poet, not a single musician, not even a ruin! 

Sparta is the only Greek city that contributed nothing to humanity: is that a coincidence or is there a direct correlation? Geneticists wonder, ‘did they turn stupid because when they killed their future thinkers and artists when they killed their less-than-beautiful children?"
 Servant of God, Dr Jerome Lejeune

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Saturday, March 17, 2012

Day 17 of 21 Words for 21 Days


“We need to be clear;
the quality of a civilization can be measured by the respect it has for its weakest members.
 There is no other criterion. “

Servant of God, 
Dr Jerome Lejeune


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