All went well for the first three years as I document in "A Special Mother is Born" but then we discovered Christina has a congenital anomaly in her cervical spine and had to remove her from the playscape at recess. I realized that it was her primary source of socialization, and slowly, she began to lose interest in school. Then her pediatrician and I decided she needed more intensive personal instruction as she was losing her language skills and I had a PPT meeting and opted for non-inclusive self contained classroom placement. The Special Ed Director encouraged me to enroll her in an Applied Behavioral Analysis program they were starting in the Elementary school in September 2011 and I agreed.
It was a BIG mistake.
To say the next two years were an educational disaster is an understatement. I detail it here, so there is no need to belabor the point, but it led to my decision to once again become a home educating mother this December just before Christmas. I was anxious as Christina through all the struggles with the ABA or really the autism program, had become adverse to attending school and once at home, was very isolated, wanting only to see DVDs in her room. I feared she would remain up there, refusing to learn. But a report card from school convinced me that, as difficult as it looked, I could do no worse than they had. Christina received all zeros in every subject except Computers (95) and Art (100). I certainly could do better than that mockery of a report card. Educational tesing with three outside psychologists revealed a 50 point drop in IQ scores since Christina has been in school and described her as 'non verbal'. She has lost the ability to speak and read, so I knew it was time to go.
And, in the coup de gras, I was informed by a member of the community, that Christina had been refused a library book by her aide, saying she would rip it. In eleven years of taking out books, both in our local library and at school, my daughter has only torn one book, and it was an accident. I see that as a clear sign that there was discrimination against her in school, and when I gave the staff a chance to explain what happened, they lied. So I knew I could no longer trust them to either be competent, fair or honest.
During Christmas vacation, her sisters and I made a daily schedule with her help, and she said, "School" which gave me hope that she would come to understand that school can happen at home.
Now in our daily routine, which is slowly moving from part time to full time, we do warm up swings as part of a sensory diet, do counting with manipulatives (see photo) , and are following a Downs Education International reading program designed specifically for students with Down syndrome, and, as a reward on Friday evenings, we are attending Special Olympics swimming. So far Christina has been very cooperative and enthusiastic. I will document her progress here and welcome your input.