Monday, June 29, 2009

An urgent appeal for the truth

An urgent appeal for the truth
This piece of news is a bombshell for those of us who love someone with Down syndrome. Right after we rejoiced that the Prenatally Diagnosed Condtions Awareness Act passed last October, the American College of Obstetricians, American College of Medical Genetics, and National Society of Genetic Counselors had a quiet meeting with National Down Syndrome Society and National Down syndrome Congress, at the University of South Carolina to agree on improving information given to parents expecting children with DS. Information has always been the ally of life. We are in favor of doctors and genetic counselors finally receiving some training about the positive aspects of life with Trisomy 21 as Dr Brian Skotko so eloquently expressed in this testimony before Congress at a meeting of the Congressional Down Syndrome Caucus last February.So far, great, right?But the document entitled "Toward Concurrence" didn't stop there. They denied the 90% abortion rate of DS children and that prenatal testing and genetic counseling were done to seek and destroy our precious children with DS. Have you ever seen it for any other reason? Then they took the absurdly unecessary step of saying that NDSS AND NSDC weren't pro-life. No kidding!I am preparing a press release to respond to these groups who have drawn a line in the sand by denying their help to unborn individuals with Trisomy 21 and their famlies (see attached).We MUST get this in front of the media. Please help me.I will do anything I can to help this reach the public before this type of poisonous lie becomes part of our nationalized health care system. Dr Jerome Lejeune, the French scientist who discovered the cause of Trisomy 21 devoted the rest of his life to find a cure for Down syndrome, for as he said, "If we don't find a cure, there won't be any left".Let honor his heroic efforts by declaring the awful truth of the holocaust of 90% of unborn babies with Down syndrome.
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Brian said...

Leticia -

This is important - I would like to mention this on my blog. My wife and I had a son named Ryan with Trisomy 18 - and my cousin Tom had DS - so - I do feel very much connected to your cause.

God bless you...

datri said...

I was completely irritated by the "misconceptions" part of that document. Ick.

Monica Rafie said...

What empirical evidence do they offer to support their responses to misconceptions?

You know, when you have an OB actually having his nurse dial to the abortion clinic for the patient even when the patient has expressed she doesn't want to abort - what is that - a mere stasitical margin of error? How about when you've got many, many similar stories?

They are really dissassociated from reality. And the two DS orgs are accomplices in the delusion at this point. How very sad.

Brian, I would love to hear from you about your son Ryan - maybe you will want to share his story with sometime? Feel free to email me - I'd love to hear from you!