From the National Down syndrome society
Just as we all work to provide medical professionals with information that will enhance their skills in delivering a diagnosis of Down syndrome, there are others within the medical community doing the same thing.
Currently, there is a survey online, written for a Master's thesis project, which hopes to construct practice guidelines for providing information to new and expectant parents receiving a diagnosis of Down syndrome.
The study's author says, "This study combines the complementary perspectives of parents and Genetic Counselors (professionals trained in clinical genetics and counseling skills) for the construction of guidelines to ensure that the first information parents receive about their child's diagnosis is balanced, accurate, and consistent. Your involvement is extremely valuable to healthcare professionals involved in distributing information and resources and those involved in the care of individuals with Down syndrome and their families." Please go online to take this study, and encourage your members to do so, too. This is a terrific place for your voice to be heard!
Click here to participate.