On Monday, March 23rd, we will be hosting a Down syndrome event at the world-renowned Cold Spring Harbor Labs. We chose this date to honor World Down Syndrome Day, which is celebrated on March 21st (no need to explain the significance of the date, I’m sure) and we chose this venue because we hope to attract local physicians and legislators as well. The National Down Syndrome Society and ACDS will be co-sponsoring the lecture and it will be included in NDSS’ new educational series. The laboratories will also extend an invitation to their scientists and researchers.
Our speaker for the evening will be Dr. William Mobley, of Stanford University. Dr. Mobley is currently doing research that could lead to treatments to improve cognition and memory in individuals of any age with Down syndrome. The results of the preliminary research are incredibly promising and exciting. The mapping of the human genome has opened up a whole new world of opportunities in the field of Down syndrome research and we hope to share this world with all of you and with our physicians. For more detailed information on this research you can visit www.dsrtf.org/research-current.htm.
Most families of individuals with Down syndrome would agree that it is time we bring some more attention to the research that can help our loved ones. This is a unique opportunity for you to learn about current research and at the same time show your support for our community.
Grace Auditorium at CSHL can seat up to 353 individuals and we hope to fill every seat. Help us show our representatives that our children are here on Long Island and that they have a voice. We urge all of you to save this date and to attend with anyone you know who has been touched by your child. This is a free lecture and no organization will be soliciting donations.
You may want to invite your child’s teachers and/or therapists and we hope that you will invite your own OBGYN and children’s doctors. Please also share the invite with your SEPTA. We promise that you will leave with new hope and that any professional working with a child with Down syndrome with leave with a new view of our children’s potential. Please print and share the attached invite with your child’s doctors and providers as soon as possible. We thank you in advance for your support and interest in this event.
Down Syndrome Coalition of Long Island